"This book explores the use of computer-mediated communication in rare diseases and disorders"--.

• Cover
• Title Page
• Copyright Page
• Book Series
• Editorial Advisory Board
• Table of Contents
• Detailed Table of Contents
• Preface
• Acknowledgment
• Chapter 1: Talking About Rare Diseases
• Chapter 2: Health-Related Communication and Rare Diseases
• Chapter 3: Designing Sustainable Social Media Health Communication Campaigns for Promoting Rare Diseases
• Chapter 4: Digital Media in Rare Diseases or “Knowledge Is Power”
• Chapter 5: Public Media Coverage of Rare Diseases and Disorders
• Chapter 6: Representation of Patients With Rare Diseases in Spanish Media
• Chapter 7: Networks in Rare Diseases
• Chapter 8: Challenges of Parents With Children With Rare Diseases in Portugal
• Chapter 9: Neuropsychiatry in Late Onset Tay-Sachs Disease
• Chapter 10: Portraying Rare and Misdiagnosed Diseases in Movies
• Chapter 11: How Is the Administrator's Experience in Managing Health Facebook Groups?
• Compilation of References
• About the Contributors
• Index